12.27.2005
09:00 PM - 10:00 PM EDT
MGchat / MyastheniaChat

sierra -- {welcome sierra}
sierra -- Welcome to our Tuesday night Myasthenia Gravis Chat Glad you could join us
sierra -- THOUGHT FOR THE DAY: PEACE, JOY, HUGS, FRIENDSHIP, LOVE
sierra -- Against all hope, in hope we believe”...(Romans 4:18).
sierra -- Hope everyone had a wonderful Christmas, Holiday and I pray all has a healthy, happy New Year 2006
sierra -- Love came down from Heaven to Earth on Christmas Day! (John 3:16) What is Christ's Birthday really all about? Sins forgiven, forgotten, forever!
txs-sweety -- {welcome txs-sweety}
sierra -- hey Sweety
sierra -- how are you doing
txs-sweety -- hi jan how are you tonight
sierra -- how is Miss Daisy
txs-sweety -- i'm doing okay not taking much mestinon and i can tell
sierra -- I'm ok, have to go in the am for my big heart test so please keep me in your prayers
txs-sweety -- snoring and having a great dream right now
sierra -- ty for the adorable card
sierra -- what is the latest on your situation?
txs-sweety -- yw thanx for mine. i really like that site
sierra -- I did too much Birthday partying yesterday, I am so pooped out
sierra -- can you plse send me their link, I thought I had saved it but I didn't
txs-sweety -- i will stop taking mestinon completely on the 31st and have the nerve test on the 3rd
sierra -- Harley has been such a gem with all the people coming and going here
txs-sweety -- i will send it right after chat
sierra -- did they ever find out what other condition they think you have
sierra -- thanks carol
txs-sweety -- happy birthday i brought lots of birthday cake and icecream for you
sierra -- awwww thanks
txs-sweety -- no, i think she will wait and see what happens after this nerve test, she did mention something ummmmmmmmm
txs-sweety -- can't think of it right now
sierra -- the gal who is like my aide, Debbie, and her hubby and wayne and I went to my fav place to eat and I got my fav oriental chicken salad it was awesome had a nice time yesterday and then my dear friend, Lindy, brought me over a cake. she has made a a birthday cake ever since my Mom died in 1974. we have been friends since grade school
sierra -- wayne's friends, randy and phyliss came last week from florida and we had a nice visit with them, it's just been so much running around and my MG is really acting up
txs-sweety -- i've never had that kind of salad but it sounds yummy i'm glad you had such a great time and such wonderful and true friends
sierra -- heard from Tony and he's having trouble as well, so we need to keep him and his family in our thoughts and prayers
sierra -- yes, I've lost a lot of "friends" since my MG and Heart problems, but Lindy has been true blue let me tell u
sierra -- did I tell you I've lost my third dr now
sierra -- I think that stress and me being upset about that is another reason my mg is acting up, cuz I find that when I get emotional and upset/stressed, it rears its ugly head even more
txs-sweety -- his wife is so good at emailing me i hate writing to her to take up her time, all i want is to let her know that i am thinking of them
txs-sweety -- yes, i know you have lost another doctor. there should be a law that they can't just up and leave us
sierra -- I just pray this isn't going to mess up my disability cuz every year I have to recertify u know
sierra -- and these three dr's have been with me with my MG officially being diagnosed and my heart surgery and all the deficits I've had from that
sierra -- yes, Janet is one of a kind, I so appreciate her keeping us informed
txs-sweety -- i didn't know you had to renew disability every year, how silly, doesn't the govt have enough important stuff to do??
sierra -- I don't know but I can see being recertified every five years or so, but every year is a lot of work for me and for my dr's to do
sierra -- even every two or three years
sierra -- so how is the weather there?
sierra -- it is so cold here
sierra -- my MG doesn't like cold
txs-sweety -- i'm sorry your mg is acting up, it is so easy to say don't worry, but sometimes you just do!! and i think once in a while you have to cut loose and have a good time, even if it does cause the mg to act up
sierra -- it's been rainy here as well
sierra -- well, I just try to always give it to God and let the BIG MAN handle it
txs-sweety -- it has been in the hight 70's here which has been really nice, yesterday and today i took daisy for a short walk to enjoy it
sierra -- where is everyone? I hate to see you have to carry all that birthday cake and ice cream home
sierra -- wow, go Daisy. Harley is so funny when wayne goes to get his lease, he goes bonkers
sierra -- it's so cute to watch
txs-sweety -- they could be a day off, i almost forgot it was tuesday, it was just at the last minute that i realized it was
sierra -- I got him some new sweaters and he looks so handsome
txs-sweety -- daisy does too and if i'm not fast enough she will put the handle end in her mouth
sierra -- brb
txs-sweety -- daisy has a red one with yellow trim and some red boots, she looks pretty cute too. she even helps put her sweater on and lifts up her paws for her boots
txs-sweety -- how was your Christmas, ours was really nice, we went to Tony's moms house and the whole family was there, i had a great time
txs-sweety -- i have had a couple of emails from bilme, he is doing much better. he has been able to eat and gain weight again. he is working in his restaurant again so he isn't able to come to our chats, but he wants us to know he misses us and will come on when he can
sierra -- back
txs-sweety -- hi again i was lonesome
sierra -- I had some reindeer ears for Harley and I so tried to get a pic by the Christmas Tree, but as soon as I would go to take it, he would shake his head and they would fall off his head. I so wanted a pic of him like that, Wayne just kept saying; Leave him alone hehehe
sierra -- gues it's a Mom's thing
sierra -- you will have to send me a pic or so of Daisy in her sweater and boots
txs-sweety -- that would have been a really cute picture
txs-sweety -- oh i will i think we have some of daisy in all her clothes, i will ask tony
sierra -- It would have been adorable, since he's all white with those big dark eyes, the red would have looked so good on him, hehe, the pics I have are cute though even though the ears are down
sierra -- isn't it funny how we feel about our "kids" LOL
sierra -- wow TXS, where are our peeps? I bet if we mention chocolate, they would come out quick, so you want to bring out the chocolate?
sierra -- any reflections on New year's?
txs-sweety -- oh now i remember, my dr thinks i might have chronic fatigue syndrome but i looked it up and i am not "fatigued" like the medical explanation at all
sierra -- my dr has said all along that's what she thought I had, turns out it was teh MG
txs-sweety -- sure pile on the chocolate cake, with the chocolate icing and the chocolate chips and the chocolate fudge ice cream
txs-sweety -- i read the symptoms and i just don't have it, i would like to since you get better after about 6 months
dmg -- {welcome dmg}
sierra -- my reflections for New Year's are: to have more peace and serenity and joy in my life, to be healthier, to find three new doctors that are compassionate and caring and understanding
sierra -- my reflections for New Year's are: to have more peace and serenity and joy in my life, to be healthier, to find three new doctors that are compassionate and caring and understanding
sierra -- hey Mike how u b
txs-sweety -- hi dmg good to see you
dmg -- HI all Merrrrry Christmas....
sierra -- and to continue to grow closer and nearer to God
dmg -- Hangin out and Hangin on...
sierra -- same to u Mike
sierra -- same to u Mike
dmg -- happpy b-day Jan!!
sierra -- where u been hanging out and what r u hangin on to?
sierra -- ty Mike
txs-sweety -- thanks mike hope yours was merry too
sierra -- have some of my bd cake and ice cream
sierra -- Carol made it for me and brought it tonight, wasn't that so kind of her
dmg -- I always hang on to the same thing...
sierra -- did Maria have a nice bd?
sierra -- you must bring her some home after chat
dmg -- Yes very nice lots o family...
txs-sweety -- jan i like your new years plans, think i will borrow some of them to make them mine, if you don't mind
dmg -- I made a bread pudding with prayline sauce and pecans...
sierra -- well there will be a lot left over and you just take it for your family, compliments of the BD girl
sierra -- no TXS adapt them however you need to
sierra -- my grandkids were so cute on Christmas
txs-sweety -- mike that sounds so yummy i havn't had bread pudding in ages
sierra -- every time it was my turn to open a present, my oldest, Chris, would say, Girl you are going to live it, girl, just wait, you are going to love ittttt
sierra -- then when I opened it up, they would all clap their hands and yell "Bam"
sierra -- we had gotten all of them a Bible and they were so happy and were yelling YES
dmg -- it was better the scond day when the bread and stuff turned into pudding...
sierra -- i have never had bread pudding
sierra -- how long does igt take u to make it Mike?
dmg -- it's real simple just need day old french bread, which means let it sit out for a day...
txs-sweety -- i love bread pudding plain and with the praline sauce and pecans
dmg -- I doulbled the thing so it took 1 hour 20 minutes... but I made a boat load of it...
sierra -- I wanted to share this with you, I loved it: You ask if I believe in Santa Clause? Yep . . .I believe in Santa Clause!! S inners A re N ever T urned A way C hrist's L ove's A bundant U nfailing S incere E ternally !! That is one Santa Clause we can all believe in !! John 3:16
dmg -- you gotta serve it warm with vanilla ice creame....
dmg -- AMEN Jan!!
sierra -- Mike, you should be a chef and have your own restaurant, you would be booked years in advance
sierra -- I know, wasn't that awesome?
txs-sweety -- some people think the french bread and praline sauce is a southern dish, but it is a French/Irraquois dish (shoot) i don't think i spelled that right
dmg -- I found a box in the grocery store so I bought two and a loaf of french bread... already had the ice creame..
sierra -- oh, for my bd wayne got me Bo's and Carries cd's awesome
sierra -- Bo was on tv a lot the past two weeks
dmg -- I hope he gets better health wise...
txs-sweety -- jan i saw him on abc a lot, yes i hope so too, he did seem to be having his share of medical troubles
txs-sweety -- jan i like that, i had never heard of santa clause like that, i am writing it down
dmg -- Txs are you ok ? health wise..
sierra -- he doesn't want to mess with that infection
dmg -- Jan same question...
sierra -- Mike, did you get any pics of the family over the holidays? if so, can u send them to me? please
txs-sweety -- i am doing pretty good, my hubby has a chest cold, but i have been staying away from him so i don't get it
dmg -- they all hide their faces with I get the camera out maybe I got lucky I will have to see
sierra -- well my A1C count went down and my diabetes dr was so thrilled about that PTL, I saw my heart dr last week and went for blood work and tomorrow I have that 4-5 hr big heart test, the thalium stress test, I can't do the treadmill, so they give it through an IV, last year, I had problems with it, so please keep me in your thoughts and prayers my MG has been raising its ugly head
dmg -- I think I'm getting over the chest cold but I'm sitting outside tonight 61 degrees...
sierra -- good, Mike, I've been praying extra for you
dmg -- I Will Jan...
sierra -- I have a cough that just won't go away, I have medicine for it
sierra -- we have about 8 minutes left gang
txs-sweety -- jan those cd's are so cool, i don't have the patience to look through music or movies, i like almost everything and really enjoy what davy and mike have sent me.
txs-sweety -- i will jan, and i will attack that ol' mg with my pea shooter, they hate them lol
dmg -- I been taking musnex for the muscus ... it does help the cough be more productive...
dmg -- TY Txs... I need to get back into it...
txs-sweety -- is that the stuff that makes the cough ogre leave after he and his wife move in, in the commercials
dmg -- yes I like it !!!
dmg -- I was scared the 1st time but it's not that dramatic...
txs-sweety -- i told tony to get some of it too, he needs it
dmg -- also breathe right nasal strips really let you sleep good like extra o2 all night nlong...
txs-sweety -- i hope everyone is just still celebrating and not feeling the affects of to much celebrating and that is why they aren't here
dmg -- been eating "Life" ceareal for the Choloestrol i'ts made with 100% quaker oats...
sierra -- well gang have a safe New year's Happy New Year 2006 and a healthy one for all
txs-sweety -- those strips really work, i will tell him to get those too
txs-sweety -- your lucky, i've been eating bran flakes, for youo know why lol
dmg -- God Bless All .... Here is to a better healther 2006!!!
sierra -- God Bless you both and ty for joining me tonight, for those not here a big SHOUT OUT TO YOU, to those reading the transcripts, why not give us a try? we don't bite... lol, c u next Tuesday
txs-sweety -- have a safe and fun new years God bless and take care
sierra -- TONY, A HEALTHY NEW YEAR TO YOU MY FRIEND GOD BLESS U BIG TIME
txs-sweety -- nite everyone sorry you misssed us
dmg -- I've had bowel problems but I don't like to talk about it... another reason for the "Life" cereale..
sierra -- bad boy Davy, gosh, wonder what mess he's got himself into? hehehe
dmg -- Get better Tony... Janet tell him I said that...