12.22.2005
09:00 PM - 10:00 PM EDT
MDAchat / PositiveThinking

cary_s -- {welcome cary_s}
sierra -- {welcome sierra}
hoodlum -- {welcome hoodlum}
hoodlum -- Hi everyone :o)
sierra -- wELCOME TO OUR THURSDAY DNIGHT PT CHAT
cary_s -- Hi hoodlum
sierra -- JUST TO LET U ALL KNOW, OUR BELOVED POOH, WON'T BE WITH US TONIGHT, SHE IS IN THE HOSPITAL
cary_s -- Hi sierra
sierra -- she has been in the hospital since tuesday due to an infection from her recent surgery so please keep her in your prayers and thoughts
sierra -- Hi Cary, Cary's Mom, Hoodie
cary_s -- for sure I will
hoodlum -- poor pooh....
cary_s -- yes
sierra -- tomorrow is her Birthday
hoodlum -- how are you cary?
hoodlum -- ready for Christmas???
cary_s -- Doing ok thanks Tired which is usual for me
cary_s -- I guess. How about u? hoodlum
sierra -- oops, I am so shook yup about my bud Pooh, her birthday is Sunday sorry but let's start celebrating today
cary_s -- Tomorrow I hope to get my new lenses for my glasses. Cant see very well right now
hoodlum -- I'm wiped as well...lots going on around here...
cary_s -- Yes
sierra -- I just ordered my new glasses and I can't wait to get them
sierra -- Hey Hoodie, I like this threesome phone call
cary_s -- Will be nice to see better eh sierra
sierra -- yes, it will be
hoodlum -- funny I need new ones too but my appointment got put off because of being in the hospital so I won't go until the end of Jan....
cary_s -- How's the weather ladies?
hoodlum -- BRRRRRR!!!!!!!!!!!1
sierra -- cold, cold, cold, expecting snow
sierra -- BRRRRRRRRRRR BRRRRRRRRRRR
cary_s -- It was around 60 here today rain off and on
hoodlum -- did you get the ice cary?
sierra -- is everyone ready for Santa?
cary_s -- A little Portland got most of it I think
hoodlum -- It looked bad on the news...
hoodlum -- not me..
sierra -- oh I forgot: The thought of the day is from our Pooh: "SUX"
cary_s -- Yes they had lots of wrecks
sierra -- !!!!!!!!!!!!!!!!!!!!
cary_s -- Hope she gets better soon
sierra -- Cary I loved your stories
sierra -- thanks, I will tell her
cary_s -- Ty
sierra -- Pooh says thanks and a big shout out to Cary's Mom
hoodlum -- HALO!!
profess -- {welcome profess}
sierra -- hi Pdrofess how r u doing?
cary_s -- Hi profess
sierra -- I don't recall your name, would you like to introduce dyourself to us
profess -- Hi, I am here to give all of you encoragement, I know almost everything about MD, and you can get support from me, my best friend has DMD
cary_s -- Where r u from profess? Oregon here
profess -- Texas
sierra -- nice to c u profess, r u a professional?
elliebedelia -- {welcome elliebedelia}
cary_s -- Hi ellie good to c u
sierra -- hey Ellie what's up
profess -- No, however, I am a professionAL AT MAKING PEOPLE, NOT A PROFESSION, JUST A HOBBIE, I GUESS?
rebeccalynne -- {welcome rebeccalynne}
hoodlum -- I'm back...had to get my IV supplies from the delivery guys...
hoodlum -- howdy to profess, ellie and rebecca
sierra -- hi rebeccalynne how r u doing
cary_s -- Hi becky good to c u
rebeccalynne -- Hi Cary! I'ts me.
profess -- SO, I AM STARTING A CHATROOM FOR PEOPLE WHO HAVE FRIENDS WITH MD, DOES ANYONE WANT TO BE A PART?
elliebedelia -- Good evening everyone from NH
elliebedelia -- sierra what did pooh have for surgery?
sierra -- r u going thru the MDA to start it Profes?
jd-tractor -- {welcome jd-tractor}
profess -- YES, JUST NEED A TEAM
hoodlum -- hiya JD...
sierra -- hey Mr. Entertainment?
jd-tractor -- Ho,Ho,Ho here I am
cary_s -- Hey jd good to c u
elliebedelia -- yes profess I would love to be a part of your group. We need good people like you. You are very special!
hoodlum -- profess what do you mean you need a team???
hoodlum -- have you not checked out the MDA user agreement?
profess -- YES
hoodlum -- ellie you don't even know profess this is his first chAt..
rebeccalynne -- Hi everybody - it's good to see you all! I have'nt been on in a long time - I had computer problems. I really missed all of you!
jd-tractor -- Hey professor all of these fine folks are my friends w/MD
sierra -- Ellie, u don't even know this new person, Profess,
cary_s -- missed u to becky
sierra -- ditto JD
profess -- BE RIGHT BACK
elliebedelia -- yes sierra he was on the mmd chat last night and told us all abour himself and his best friend
hoodlum -- profess you need to take the all caps off because that means you are screaming at us..
sierra -- Profess, could you please low lower case please
sierra -- Profess, could you please low lower case please
jd-tractor -- oh,oh it looks like we scared him off.....lol
hoodlum -- oic ellie so he is making rounds...
hoodlum -- what chat needs are not currently being met by the currently scheduled chats??????????
rebeccalynne -- Cary , thanks for the Christmas card and the picture - You're a pretty girl! Did you get my card?
sierra -- hey Cary, plse send me your pic ok I would love to c u
cary_s -- TY Yes I did becky.
cary_s -- Ok sierra
rebeccalynne -- Great
sierra -- just for the record: why change something if it ain't broken
rebeccalynne -- Well, how's everybody been?
cary_s -- GOt anymore snow jd?
sierra -- hey JD don't forget Pooh's BD on the 25th and mine on the 26th
hoodlum -- cold rebecca......how about you?
cary_s -- Haven't had any research chats in awhile
hoodlum -- The chat administrator doesn't seem to schedule them anymore...
cary_s -- Doing alright here thanks How r things in TX becky
sierra -- well Cary, I had some for my chat
elliebedelia -- I think we should have known him better Why would someone want to come to these chats if they are not for real anyway? I am so gullable I have to be more careful all the time!
profess -- Hello everyone , I'm back!
hoodlum -- But you are right cary we do need more of the Research/ Doctor Q & A chats.
profess -- By the way, this is not my first chat
hoodlum -- understand that profess seems like you may be making rounds.
hoodlum -- have to wonder what your motivation is...maybe I just need to know why you are here.
rebeccalynne -- Hoodlum, I've been fine - it's cold here too 58- but it's a damp cold, we're by the water here.
sierra -- I feel it funny to have you or anyone come into a chat and say u r here to bring encouragement...
profess -- yes, just want to be a friend to all, that is what i feel is my job as someone without MD, i feel so thankful for the many blessings that i have
jd-tractor -- no new snow,I got side tracked watching DEAL or NO DEAL,supposed to get up to 40 tomorrow so some snow will melt
sierra -- it's like the wiseman coming to bring good tidings, comfort and joy
elliebedelia -- tell us more about yourself and why you are in this chat profess
jd-tractor -- I am already sending Santa For yours and poohs birthday so if he dosen't leave anything then it means you have been naughty
hoodlum -- tell us about your friend profess...
hoodlum -- I've been good jd...is santa coming my way???
sierra -- JD u know us better than that
hoodlum -- I know for sure he isn't making it to Jans house... LOL
sierra -- Hoodie, God doesn't like ugly
elliebedelia -- God Loves everybody
sierra -- Hoodie, I've given u the best days of my life, and this is how u treat me?
rebeccalynne -- Profess, If you are sincere, and I'm assuming that you are, I admire you very much! If not; that's another story!
jd-tractor -- geez I don't know hood ,you've been doing a lot of running around lately .......lol
sierra -- I was very positive now I am going down down down down
hoodlum -- hmmmmm...jd what kind of running around??/
profess -- well, he has DMD, and he is very active, and he makes more of an effort than his mother makes him. He can do alot more that what the doctors said that he could after his spinal transfusion, i think, and he is able to do more everyday, and sometimes we look at pictures and he says he was happy and wouldn't ask god for anything better in his life, he is my hero, not the other way around!
sierra -- how long has he had DMD? how old is he? how long have you two been friends?
profess -- Diagnosed at 2,13,8 years
sierra -- Profess, r u a minister?
hoodlum -- spinal transfusion for DMD..that is a new one to me...usually used in SMA and like dxs...
rebeccalynne -- Profess, Your friend has a GREAT ATTITUDE!
hoodlum -- what do you mean 2,13 8 yrs????
hoodlum -- when you are dxd with DMD it is a one time dxs.
elliebedelia -- profess God begins with a capital G
profess -- Not at the moment, but my grandfather was, and that is what i want to be my profession
sierra -- so Cary what's going on?
sierra -- how old r u Profess?
hoodlum -- who is spending the holidays with family? I've had enough of profess...professing.
profess -- 13
sierra -- JD: any words of wisdom?
rebeccalynne -- Hoodie- lol
profess -- I am not here to make people angry, if you want me to leave, i understand!
hoodlum -- profess while this chat is open to all comers there are chats for young adults and kids...check out the calendar.
elliebedelia -- any fruitcakes out there???
hoodlum -- I'm a nut...
elliebedelia -- our son is comming home from the Navy for the weekend, oh also his wife
sierra -- no we don't ever want people to leave however we like honesty and sincerity
hoodlum -- and everyone in this room could be your mother, grandmother or father/grandfather...
profess -- I JUST TRY TO HELP, AND I GET HURT BY SOME OF YOU!
rebeccalynne -- I'm a fruitcake! no doubt about it!
sierra -- great Ellie
hoodlum -- cool ellie...how long since you've seen him.
elliebedelia -- You are shouting again
profess -- I KNOW!!!
hoodlum -- You need to review the chat user agreement profess...we are all living with MD of some kind or another.....
sierra -- everyone here has a hard time with their own MD and we do get phonies in here a lot especially when school is out for the summer or holidays
hoodlum -- If you continue to shout you will be terminated.
profess -- I'M GONE!
sierra -- don't let the door hit u on the way out
jd-tractor -- who you calling a fruitcake ? the girl on Deal Just gave away 275 thousand and now they're on commercial ,what suspense
elliebedelia -- He is stationed in Groton Ct and we are in NH so he gets home frequently
cary_s -- bye profess tc
jd-tractor -- geez hoodie watch how you throw around that word terminate......lol
hoodlum -- do you like that show jd??? My attendant thinks it is the greatest thing!
sierra -- I love that new show
cary_s -- neat ellie
sierra -- she is the new Wonder Woman or Arnold in drag
jd-tractor -- good thing the gov. didn't shut down Groton or he couldn't come home ellie.....lol
hoodlum -- Rotten Groton CT is where my fiance was stationed.
rebeccalynne -- But you know guys, he (profess) did'nt have to tell us that he did'nt have md - How would any of us know? Think about it!
sierra -- you know what I really think is wrong with our dear Pooh, she is having Survivor withdrawal
sierra -- you know what I really think is wrong with our dear Pooh, she is having Survivor withdrawal
elliebedelia -- we have heaps of snow here and more comming over the weekend no dreamming of a White Christmas here,its for real
hoodlum -- many many MOONs ago.
cubby -- {welcome cubby}
jd-tractor -- I didn't realize pooh wasn't here,HELLO POOH
sierra -- Hi Cubby how r u doign
hoodlum -- while that is true rebecca he was immature and I was at least uncomfortable with the way he was presenting (aka profess-ing) himself. There is no way he could be a chat host.
hoodlum -- hi cubby :o)
elliebedelia -- Hey everyone, Great News, I was awarded social security dissability
sierra -- I loved your story Cubby good job
cary_s -- Hi cubby good to c u How r things there?
hoodlum -- YEAH ellie!!!!!!! :o)
jd-tractor -- good news ellie
sierra -- WHOOOO HOOOOO ELLIE
rebeccalynne -- Any comments on what I just wrote?
cary_s -- that's good ellie
cubby -- Thanks Sierra ok Cary how are you
hoodlum -- see mine rebecca...
cary_s -- Doing alright thanks
cubby -- Hi hoodlum nice to meet you
hoodlum -- nice to meet you too cubby...
sierra -- oh the latest on my drama.... ok, My Neuro retired in Sept, then last week My Eye Specialist told me he was retiring this week, Yesterday my DR told me she was moving to New Hampshire in February OK is it me or what??? I am I wearing them out
cubby -- Where u from hoodlum
elliebedelia -- yes rebecca I am very gulable and tend to believe everything i am told and my mom is still warning me that i am too friendly and i am that way and always will be but i realize we do have to be careful
hoodlum -- what a nitemare sierra!
hoodlum -- I am from PA cubby YOU?
cary_s -- oh geez sierra
cubby -- I live in NH
hoodlum -- do you know ellie??? LOL
elliebedelia -- hey sierra if its a good doctor i hope to find him
jd-tractor -- more like scarying them off now their going up to see ellie.....lol
elliebedelia -- well cubby and i know each other through chat
sierra -- Rebecca: As chat hosts we are very protective of our chatters, and sometimes we have to go on gut feeling and we privately im one another to discuss our feelings about what is being said, and because of past experiences we have to be ever more careful of newcomers
hoodlum -- Because of past experiences in these chats we as chat hosts have had to become more suspicious of new comers...
jd-tractor -- you're just too tough of n old bird sierra.......
sierra -- they have been so wonderful to me, from the MD diagnosis and then my hear surgery and I just hate to have to start over from scratch
sierra -- tweet tweet tweet
jd-tractor -- breaking in a new crew sierra!
cubby -- Yes me and ellie met in the chat
hoodlum -- It is so hard to start over especially when things are medically complicated...
elliebedelia -- i go to a clinic and the doctors never stay more than 2 yrs
cubby -- Jd I decided to do some people watching tonight
sierra -- and the thing that has be concerned is fighting back these past two years from being at the brink of death and having to fight so hard being 100% paralized and all you know all these dr's knew me and my situation like the back of their hands
hoodlum -- wow ellie that has to be difficult...maybe you can give lessons on starting over with new docs...
rebeccalynne -- Sierra, Ellie and Hoodie, I understand completely! I guess I want to believe in the best of people ...I'm gullible too!
elliebedelia -- i have an asian one now who is very intellegent
jd-tractor -- alright way to go cubby ....
jd-tractor -- and to think we all could have increased our education level.....lol
sierra -- let's change the name of this chat from positive thinking to positive gullible what do u all think
cubby -- Thanks jdlol
jd-tractor -- yes but sierra did you see the light? ?
hoodlum -- lol jd...sometime I feel like I know more than my docs.....
rebeccalynne -- Sierra - yeah!
sierra -- they don't call me Sparky for nothing JD
hoodlum -- 7 minutes and counting...
cubby -- Hoodlum I totally agree
rebeccalynne -- Sierra, I say yes
elliebedelia -- its not easy starting over because I have to teach them everything about me and mmd and then he wanted Me to reserch what meds I can take and which ones to not take. I would like a piece of their paychecks
cary_s -- chat sure went quick
cubby -- Rebecca where you from
hoodlum -- me too ellie!!!!
hoodlum -- Hope everyone has a wonderful Christmas! Say a prayer for buddy bear POOH.
jd-tractor -- before we get the boot MERRY CHRISTMAS toALL"God bless us everyone"
sierra -- I would like to thank all of you for joining us tonight, another interesting chat, Please let's all keep Pooh in our thoughts and Prayers. I so love her and only want teh best for her, she has been through so much, Pooh, Hoodie and I are on our way to bust you outta there, if we can't get u out, I will send SAnta a fwd address card
cary_s -- Did u read the latest research update on the main website ellie There was something about MMD
elliebedelia -- Amen to that jd Merry Christmas to you all from the White Mountains
rebeccalynne -- Sierra, are you feeling better? I was dx with late-onset F.A. - Do you have Fredreich's ataxia too?
hoodlum -- I've got the "special disguise glasses."
cubby -- Merry Chrismas hope Santa is good to you.God Bless
sierra -- Peace, Joy, Love to all Good Health for 2006 instead of paying the dr's all the big bucks, let's all stay healthy and go on a Positive Gullible cruise
elliebedelia -- I will read it cary I haven`t yet thanks
sierra -- don't forget your tigger feet Hoodie
cary_s -- Merry Christmas everyone
sierra -- no I don't have FA
elliebedelia -- {goodbye elliebedelia}
hoodlum -- never sierra...although Hershey holds them hostage for bones in the morning.
jd-tractor -- hey hoodie,Groucho Marx isn't part of Christmas.....lol
cubby -- I will keep Pooh in my praters
rebeccalynne -- Sierra, that would be fun, a cruise!
sierra -- hey Serg, Love to you as well, thanks for taking such good care of our buddy bear Pooh
hoodlum -- bye ellie TC
cubby -- See ya ellie
sierra -- God Bless everyone, Merry Christmas all, nite John Boy
jd-tractor -- And to all a GOOD NIGHT
jd-tractor -- nite jim bob
sierra -- hey Hoodie, can you turn the lites off and take the cat with u
sierra -- nite Cary and Cary's Mom
sierra -- nite MAry Ellen
cubby -- Night GOeBless
cary_s -- night night
hoodlum -- LOL sierra...
rebeccalynne -- MERRY CHRISTMAS to you all! M ay the coming year bring some real breakthroughs and maybe even a cure!!!
sierra -- Hoodie thanks for being here ole buddy ole gal
hoodlum -- that would be great rebecca..
hoodlum -- YW sierra.
sierra -- Please pray for the cyst that is in my brain