Expanding the voice of our MDA Community
Preparing for College Success:
It's Never Too Early to Start Plotting Your Path, and Make Wise Choices

When it comes to preparing for college, making informed decisions and managing your ever-changing expectations are key first steps, says Chris Rosa, Ph.D., Dean of Student Affairs at the City University of New York (CUNY).

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Campus Accessibility Considerations

MDA offers this checklist for prospective college students — a list of considerations to address when touring a campus. Whenever possible, the campus tour should be given by a member of the administration, not a student tour guide. While touring the campus and meeting with the Office of Disability Services, the following considerations should be addressed.

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MDA Champions:
Meet Senator John Barrasso (R-WY)
Senator John Barrasso (R-WY)
Senator John Barrasso
represents Wyoming in the U.S. Senate.

Senator John Barrasso is a longtime friend of MDA, having served as Telethon Emcee for Wyoming's Labor Day efforts on the Jerry Lewis MDA Telethon on KTWO-TV, Channel 2, in Casper for more than 25 years.

But along with friendship and unyielding support, Senator Barrasso's in-depth understanding of the issues of importance to families within our MDA community, as well as his unique professional background have made him an extraordinary champion for members of our MDA community nationwide.

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Meet Chris Rosa
Chris Rosa
Chris Rosa

Chris Rosa shares his professional expertise surrounding higher education for students with disabilities in this edition of The Voice, but many of the practical tips he shares come not only from educational and career training, but his personal life experiences as well.

Rosa, 42, earned a doctorate in sociology at the CUNY Graduate Center; his dissertation is on “Disability Rites: The Construction of American Disability Culture.”

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Voice Box

“The Fire Service adopted the MDA many years ago. We raise monies within Alabama and across the Nation to support the research to find a cure and to help send affected children to camp. I was excited to meet with the Honorable Congressman Spencer Bachus, a great friend to the Fire Service, and the opportunity to ask for his support of H.R. 2149 — the Spinal Muscular Atrophy Treatment Acceleration Act.”

— Chief Bill Hewitt, Tarrant, Ala. Fire and Rescue who met with Congressman Bachus on Aug. 4 along with a local family served by MDA, and MDA staff members.

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September 2009
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Advocacy in Our Schools: Making the Most of IEP and 504 Plans
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Thank You to Our MDA Community for Making MDA's August Congressional Recess Outreach Effort — The Inaugural MDA Fly Out — A Tremendous Success

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Notebook
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Star-Studded Auction …
Check It Out!
Jerry Lewis MDA Telethon Online Auction
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Questions, comments, or items for future issues? E-mail us at advocacy@mdausa.org.
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