On September 23, MDA held the first National Neuromuscular Transitions Summit in Washington, D.C., to identify the obstacles and opportunities faced by young adults living with pediatric neuromuscular disease as they plan for their futures. The summit's primary goal was to outline key resources and success factors that had benefited each of the panelists, as well as to identify the insurmountable obstacles that each panelist encountered.
Aaron C. Bates is one of Orlando's top civil rights advocates and a true inspiration. Diagnosed with type 2 spinal muscular atrophy, Bates knows firsthand the challenges faced by those living with neuromuscular disease who are working toward achieving success and independence.
“Be a proactive student with a disability — when you see an accessibility issue on campus, bring it to the attention of your university or college! You are paving the way for future generations of students with disabilities!”
Through MDA websites, local offices and clinics, families are referred to a wide array of organizations that can help. With so many valuable resources available for those living with a neuromuscular disease, the following is a snapshot of the resources available.
On September 13, the NIAMS Coalition Congressional Briefing was held in Washington, D.C., to commemorate the 25th anniversary of the National Institute of Arthritis and Musculoskeletal and Skin Diseases (NIAMS).
