MDA’s Road Map to Independence

The “Road Map to Independence” is a guide to becoming your own advocate and living successfully with neuromuscular disease. The guide assists teens, young adults and their families as they prepare for and transition to independent adulthood.

The transition tool is designed to help teens and young adults grow up to be independent. The questions in the book cover the areas of diagnosis, health and education. They serve as a guide to what our youth and families should know and do to achieve independence by the end of high school.