MDA On the Record
Advocacy Statements

Coalition Letter of Support to Congress regarding extension of the Therapeutic Discovery Project Tax Credit – December 14, 2011

Coalition Letter of Support to the Joint Committee on Deficit Reduction to maintain current Medicare B reimbursement – October 7, 2011

Coalition letter of support for the National Center for Advancing Translational Sciences (NCATS)
– July 29, 2011

Cures Acceleration Network (CAN) funding letter of support – May 9, 2011

Coalition Letter of Support to Congress regarding H.R. 1041 (Fairness in Medicare Bidding Act) – March 28, 2011

Coalition Letter of Support to Congress regarding further extension of the therapy cap for outpatient physical therapy, occupational therapy and speech-language pathology services – November 2010

Coalition Letter of Support to Speaker Pelosi regarding rectifying the omission of neurology in HR 3590 and HR 4872 – September 2010

Coalition Letter of Support to Congress regarding H.R. 3790 (Medicare Competitive Bidding Repeal Act) – July 15, 2010

Coalition Letter of Support to House Labor HHS Appropriations Committee for funding of newly established Cures Acceleration Network (CAN) – May 14, 2010

Coalition Letter of Support to Senate Labor HHS Appropriations Committee for funding of newly established Cures Acceleration Network (CAN) – April 16, 2010

Letter to Congress Regarding Regulatory Pathway for Biosimilars from Coalition of Advocacy Groups – January 14, 2010

Lifetime Caps Coalition's Letter to Congress Regarding Health Reform Bill – January 8, 2010

Letter from MDA and Coalition of National Patient Advocacy Groups to Representative Meek in Support of H.R. 3790 to Repeal Competitive Bidding – December 18, 2009

Letter to Senate Finance Committee from Coalition of Patient Advocacy Groups on Importance of Comparative Effectiveness Research based on 'clinical effectiveness' – December 3, 2009

Letter from MDA and various other health care organizations to Majority Leader Harry Reid, Republican Leader Mitch McConnell, Speaker Nancy Pelosi and Republican Leader John Boehner about the Therapeutic Discovery Project Tax Credit – October 19, 2009

Letter from Dr. Valerie Cwik, MDA senior vice president for research and medical director, to Tony Merlin, M.D., Deputy Director of the Influenza Coordination Unit at Centers for Disease Control and Prevention about pro-active measures to protect the MDA community from the H1N1 virus – September 2, 2009

Letter from Dr. Valerie Cwik, MDA Senior Vice President – Research & Medical Director to the CDC on the importance of, and recommendations for, design and implementation of the National ALS Registry – July 24, 2009

Letter from MDA and 58 organizations urging inclusion of rare disease as an area deserving "special consideration" in the Small Business Innovation Research (SBIR) program reauthorization – July 7, 2009

Letter from MDA’s President and CEO, Jerry Weinberg, to Charlene M. Frizzera, acting administrator, Centers for Medicare and Medicaid Services, on competitive bidding and Medicare – February 12, 2009

Letter from MDA and 65 health care organizations to Chairman and Ranking Member of the Senate Committee on Appropriations and the Chairman and Ranking Member of the Senate Appropriations Subcommittee on Labor, HHS and Education. – January 6, 2009

Letter from MDA and 30 health care organizations to House and Senate Leadership urging them include funding for small, research-intensive biotech companies in stimulus package – Dec. 19, 2008

Letter from MDA and 59 health care organizations on the reauthorization of the Small Business Innovation Research program – September 18, 2008
To Speaker Pelosi and Congressman Boehner
To Senator Reid and Senator McConnell

Call to Action Letter from MDA to SMA Families on the SMA Treatment Acceleration Act - May 2, 2008

Statement from MDA’s National Chairman, Jerry Lewis, on the introduction of the MD-CARE Act Reauthorization – May 2008

Letters from MDA’s President and CEO, Jerry Weinberg, on the SMA Treatment Acceleration Act – April 10, 2008
To Representative Kennedy
To Representative Cantor
To Senator Stabenow
To Senator Isakson

Letter from Jerry Lewis on Medicare Competitive Bidding - October 3, 2007
To Representative McCrery
To Representative Rangel
To Senator Baucus
To Senator Grassley

Letter from MDA’s National Task Force on Public Awareness to Representative Allen on Medicare Competitive Bidding – July 6, 2007