Alexis Villa of California, born in 1995, has type 3 SMA. She uses leg braces most of the time, and occasionally a wheelchair for longer distances. She loves going to MDA summer camp and is seen regularly at an MDA clinic. Introduction Questions and Answers Does It Run in the Family? MDA's Search for Treatments and Cures MDA Is Here to Help You _________________ A Family Guide to the Consensus Statement for Standard of Care in Spinal Muscular Atrophy (PDF)

MDA IS HERE TO HELP YOU

The Muscular Dystrophy Association offers a vast array of services to help you and your family deal with SMA or SBMA. The staff at your local MDA office is there to assist you in many ways. The Association’s services include:

• nationwide network of clinics staffed by top neuromuscular disease specialists

• MDA summer camps for kids with neuromuscular diseases

• help with obtaining durable medical equipment through its national equipment loan program

• financial assistance with repairs to all types of durable medical equipment

• annual occupational, physical, respiratory and speech therapy consultations

• annual flu shots

• support groups for those affected, spouses, parents or other caregivers

• online support services through the e-community myMDA and through myMuscleTeam, a program that helps recruit and coordinate in-home help

MDA’s public health education program helps you stay abreast of research news, medical findings and disability information through magazines, publications, educational speakers, seminars, videos and newsletters.

MDA’s Web site at www.mda.org contains thousands of pages of valuable information, including disease specifics, research findings, clinical trials and past magazine articles.

Everyone registered with MDA automatically receives Quest, MDA’s award-winning quarterly magazine. Quest publishes detailed articles about research findings, medical and day-to-day care, helpful products and devices, social and family issues, and much more. Other MDA publications can be found at www.mda.org/publications; many booklets are available in Spanish. Ask your local office for “MDA Services for the Individual, Family and Community” and for help with obtaining copies of other publications.

If you have any questions about SMA or SBMA, someone at MDA will help you find the answer. To reach your local MDA office, call (800) 572-1717.

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